Sunday, July 18, 2010

Off the Cliff July 18,2010

Hey All,

So here's the day-by-day after chemo...
Monday - chemo round one. A l
little headache, no appetite, nausea...all pretty much OK with meds.
Tuesday - Neulasta shot. Tired. Jim had to drive us all the way home. Little appetite, but OK overall.
Wednesday - able to work at home several hours. Tired but OK. Little appetite, but did eat light dinner! Friend visited overnight. Second short walk of the week!
Thursday - doing well. Attended two meetings, worked in my office. Ate pretty well...lightly. Tired at end of day.
Friday - crushed! So tired. No appetite. Slept all day. Achy. Low grade fever. Headache. Hard to even drink water. Feel awful! Not able to work as promised.
Saturday - better. Two naps, no walking outside, eating a little. Think yesterday was about the Neulasta. If so, hate it!
Sunday - better again. Can keep my head off pillow for a couple of hours at a time. Very limited appetite. Opened mail for the week...thank goodness nothing urgent. Weight down 6 lbs. this week. I called it the chemo diet - maybe so.

Was hopeful at the beginning of the week that this might be relatively OK to manage, but the end of the week changed my mind. Not looking forward to next round in 8 days. Jim is my stalwart...hard to think about this without him, not sure how I'd manage! From scrambling eggs to doing laundry, to taking me to appointments, so many things. I am soooo lucky!

Hope you are all having a great summer!


  1. Dearest Aunt Sue,

    I'm so thankful that you are posting your experiences. We are so far away it seems but being able to share in your journey and send our love is a blessing. You are by far one of the strongest women I have ever had the pleasure of knowing. Soon you will look back at this time as another one of life's hurdles that you overcame with grace and courage. We love you so much and the girls send you tiny beautiful kisses!

    xoxox Sarah and Josh xoxox

  2. Sue - Your blog shows you're doing it just right... one day at a time. Hey, don't forget you've got to keep the nutrition up. A couple of ideas... you can take ensure or Boost, whatever flavor you can tolerate, and put it in a blender with ice. Some people do much better with a "Boost shake" than with Boost alone. Also consider taking whole fruit juice (from the actual fruit, and adding fruit chunks to it, and freezing it in a popsicle. Or if you're feeling more like warm stuff, try getting someone to make you some real (if possible) broth, with a little rice and chicken breast. Someone can make all this for you in advance so it's there when you're too tired.

    We just got back today from our 7 day horse pack trip in the high Sierra. It was phenomenal. I'll send you some pictures... hopefully a good distraction for you.

    Hang in, Sue. We're all rooting for you.
    Love Jody